Watchful Waiting 

Here is the latest update on my cancer. As you see from my data below, I remain in the “watchful waiting ” phase and I hope to hang out here for a few more years.  

The definition of active multiple myeloma is:
 1.) Clonal bone marrow plasma cells ≥10%, mine was 13% percent on 12-2014 

   AND

 2.) any one or more of the following CRAB features or myeloma-defining events:

 

· Hypercalcemia: serum calcium greater than 11 mg, mine is in low 9’s

· Renal insufficiency: creatinine clearance greater than 2.00, mine is 1.09

· Anemia: hemoglobin value less than 100g, mine is 147

· Bone lesions: one or more osteolytic lesion on skeletal radiography, CT, or PET/CT. I had no lesions when full MRI was done 12/29/14. We will do an updated bone survey in 2017.

· 60% or greater clonal plasma cells on bone marrow examination, my percentage was just 13% when diagnosed in December of 2014.

· Serum involved / uninvolved free light chain ratio of 100 or greater, mine last month was 14.

· More than one focal lesion on MRI that is at least 5mm or greater in size. None for me

All of the data above is favorable and indicates my myeloma does not warrant treatment at this time. However, the bad guy cells remain active in my bones.  My type of myeloma is IgG, where my G immunoglobulin continues to grow. The pace remains moderate but steady.  This trend line would indicate that treatment might wait another 2 or 3 years. Most of my IgG is diseased and no use to my immune system. Of further concern are my low IgA and IgM levels. My immune system is compromised. If I avoid recurring bacterial infections, we can sail on. So far so good there, but we must watch.

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Living through cancer: My Journey of self discovery

Naturist Fab

They say that writing helps in dealing with what is going on with your life. I hope that by putting my emotions into words I can in some way help myself and others when dealing with a traumatic event in one’s life.

As the title of this blog states I am living through and past cancer. For many of you who follow my blog know me as an artist and naturist and I write and blog about body positivity.

I will discuss this issue here as well, as my body has gone through many changes after my surgery both in weight loss as well as the scars. The weight, I have to regain and the scars, either physically or emotionally will heal over time.

Before I get to that let me tell you about how this all began.

Seven months ago in mid-July I had what I thought was a canker…

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